Guest Post/ Grandparenting a Child with Special Needs

I put my mother on the spot a couple of days ago and asked her to write a post for me. If you haven't already read 'How Do Grandparents of ASD Children Feel?', please click on the link and do so.


Before reading her words, however, I want you to know the first year of Cody's life was hard. Cody was born with multiple birth defects and we spent a great deal of time either in doctor's offices or in and out of hospitals. If it weren't for my mother, I could have never made it through that first year. She was by my side every step of the way. Years later, my mom even flew to Oregon twice within a six month period to take care of my younger children while Cody fought for his life in PICU.


From my point of view, grandparents play a significant role in raising a child with disabilities. My mother is an incredible person and I am happy that she wrote the following guest post:

Having Cody for a grandson has been an awesome experience. I can honestly say I would not want Cody to be any different than he is. He is truly a gift from heaven.

Everyone who has the opportunity to know Cody finds out what a great personality he has. I’m sure they will never forget him.

With that said, I have to say it has been hard at times to see my daughter, Cody’s mom, go through some very difficult times with Cody, most of them medical. I marvel at how amazingly strong she has become in facing these struggles.

Cody was my first grandchild. I didn’t have a preconceived idea what a grandchild should or shouldn’t be. I was never disappointed he was born different. My greatest worry has always been whether he is healthy or not.

I love Cody the same as all my grandchildren, we just have a different relationship and bond. I was privileged to be a big part of Cody’s first year. He loves his grandma, and grandma loves him!!

Beatitudes for Disabled People

Blessed are you that never bids us "hurry up" and more blessed are you that do not snatch our tasks from our hands to do them for us, for often we need time rather than help.

Blessed are you who take time to listen to defective speech, for you help us to know that if we persevere, we can be understood.

Blessed are you who walk with us in public places and ignore the stares of strangers, for in your companionship we find havens of relaxation.

Blessed are you who stand beside us as we enter new ventures, for our failures will be outweighed by times we surprise ourselves and you.

Blessed are you who ask for our help, for our greatest need is to be needed.

Blessed are you when by all these things you assure us that the thing that makes us individuals is not our peculiar muscles, nor our wounded nervous system, but is the God-given self that no infirmity can confine.

Blessed are those who realize that I am human and don't expect me to be saintly just because I am disabled.

Blessed are those who pick things up without being asked.

Blessed are those who understand that sometimes I am weak and not just lazy.

Blessed are those who forget my disability of the body and see the shape of my soul.

Blessed are those who see me as a whole person, unique and complete, and not as a "half" and one of God's mistakes.

Blessed are those who love me just as I am without wondering what I might have been like.

Blessed are my friends on whom I depend, for they are the substance and joy of my life!




by Marjorie Chappel

World Autism Awareness Day by the President of the United States of America

A PROCLAMATION

With autism spectrum disorders (ASDs) affecting nearly one percent of children in the United States, autism is an urgent public health issue with a profound impact on millions of Americans. World Autism Awareness Day is an opportunity to recognize the contributions of individuals with ASDs and rededicate ourselves to the cause of understanding and responding to autism.

Men and women on the autism spectrum have thrived and excelled in communities across America and around the world. Yet, despite great progress in understanding ASDs, challenges remain for these individuals and their loved ones. For too long, the needs of people living with autism and their families have gone without adequate support and understanding. While we continue to encourage the development of resources for children on the autism spectrum and provide necessary resources for their families, we must also remember that young people with ASDs become adults with ASDs who deserve our support, our respect, and the opportunity to realize their highest aspirations.

As our understanding of the autism spectrum grows, my Administration remains dedicated to supporting children and adults impacted by autism. Led by the Department of Health and Human Services, we have expanded investments in autism research, public health tracking, early detection, and services — from early intervention for children to improved long-term services and support programs for adults. My Administration maintains a firm commitment to advance autism research and treatment, as well as promote education, employment, and equality for all individuals with autism, from early childhood through employment and community life. We will continue to work with the Congress, experts, and families to improve Federal and State programs that assist individuals with ASDs and their families and to bolster the impact and reach of community support and services. I encourage all Americans to visit www.HHS.gov/autism for more information and resources on ASDs.

With each breakthrough in research and each innovative treatment, we open endless possibilities for the many American families who have been touched by autism. As we mark World Autism Awareness Day, let us recommit to improving the lives of individuals and families impacted by ASDs and creating a world free from discrimination where all can achieve their fullest potential.

NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim April 2 of each year as World Autism Awareness Day. I call upon the people of the United States to learn more about autism and what they can do to support individuals on the autism spectrum and their families.

IN WITNESS WHEREOF, I have hereunto set my hand this first day of April, in the year of our Lord two thousand eleven, and of the Independence of the United States of America the two hundred and thirty-fifth.

BARACK OBAMA

The Monument

The following poem is from the book Charlie's Monument by Blaine M. Yorgason. I remember reading this book as a teenager. Little did I know... 

God,

before He sent his children to earth

gave each of them

a very carefully selected package

of problems.

These,

He promised, smiling,

are yours alone. No one

else may have the blessings

these problems will bring you.

And only you

have the special talents and abilities

that will be needed

to make these problems

your servants.

Now go down to your birth

and to your forgetfulness, know that

I love you beyond measure.

These problems that I give you

are a symbol of that love.

The monuments you make of your life,

with the help of your problems,

will be a symbol of your

love for me.

Your Father.

Parenting a Child with Special Needs

This is an interesting article. I'd like to hear your thoughts after reading it.

Parenting a Child with Special Needs